COMMUNITY
Fifth Sense Stories
The best way to really understand the impact of smell and taste disorders is through the stories of the people affected. By sharing these we can both educate others and end some of the isolation these conditions often create.
Stories have an impact in other ways too; they can demonstrate the need for more support from the healthcare profession, more research, and help us transform people’s understanding of the importance of smell and taste.
So, here are some of the members of the Fifth Sense community talking about their challenges, frustrations and, in some cases, successes too. If you would like to share your story, please contact us at info@fifthsense.org.uk
Karen’s Story: Finding Support and Guidance for Pre-Covid Smell Loss and Recovery
In her sixties and living in East Sussex, Karen is a full-time carer for her mother, who suffers from dementia. Shortly after returning from a working life in America to look after her mum, she was devasted when she lost her ability to smell. “I am a person who has always enjoyed my sense of smell – walking in woods, perfume, cooking smells. Read more “Karen’s Story: Finding Support and Guidance for Pre-Covid Smell Loss and Recovery”
Abi’s Story: Growing Up Without a Sense of Smell
I noticed my daughter was different from an early age but couldn’t put my finger on why. She was a well-behaved toddler; fun, happy and eager to learn. The one problem we had was food. Whenever we sat down to eat, the antics would begin. She’d express disinterest in a variety of ways. Her arms would stretch. The complaints would start: “I’m tired, I don’t like this, this is too hot, this is too cold”. Read more “Abi’s Story: Growing Up Without a Sense of Smell”
Lesley’s Story: A Challenging Journey of Post-Viral Smell Loss
Everyone’s talking about Covid 19 right now. Fifth Sense has been tracking the reported link between this novel virus and smell loss which you can read here. It’s worth remembering though that many and varied viral infections have always been with us. Read more “Lesley’s Story: A Challenging Journey of Post-Viral Smell Loss”
Hans’ Story: Relishing Taste Without Being Able To Smell
Hans Stammel is a long-time Australian citizen, having arrived from Germany in 1967. Now aged seventy-three, he was previously a documentary filmmaker and latterly a website designer. These days, he and his wife share their time equally between homes in Australia and the south of France. Read more “Hans’ Story: Relishing Taste Without Being Able To Smell”
Helen’s Story: Anosmia, Parosmia, Hyposmia to Today
Helen’s ears pricked up when she heard how people with Covid 19 were experiencing problems with smell and taste. This brought back unhappy memories from a time, some twenty years previously, when Helen found herself in the same situation Read more “Helen’s Story: Anosmia, Parosmia, Hyposmia to Today”
Trevor’s Story: How Alison’s Story Helped Me Find Treatment
Trevor lives in the South Cotswolds where, as a retirement project, he runs walking tours, mostly of Bath. With his background as a chartered surveyor, Trevor’s understanding and love of architecture informs his talks when touring the city. His other loves though, notably his passions for cooking, food and music, are disrupted by a double whammy of smell and hearing loss. Read more “Trevor’s Story: How Alison’s Story Helped Me Find Treatment”
Adrian’s Story: Living Without Taste – A Story of Ageusia
It started after a very bad cold that seemed to go from person to person in my household, eventually making it’s way to me, just in time to ruin the Christmas pleasures of smells and tastes that fill our household around that time of year. Read more “Adrian’s Story: Living Without Taste – A Story of Ageusia”
Alison’s story: Able to smell again after successful treatment for rhinosinusitis
I lost my sense of smell very gradually around 2009. I thought it would come back by itself after a while – but of course, it didn’t. The worst thing was not being able to taste the flavours of food, or smell lovely things like freshly baked bread, or roses in the garden. Read more “Alison’s story: Able to smell again after successful treatment for rhinosinusitis”
Joanne’s Story: Road to Recovery
It all started with a very bad head cold in April 2015. After taking antibiotics I appeared to make a full recovery. However, come July I noticed some bad, putrid smells. These horrible smells intensified twentyfold when I was around coffee, smoke, or cooked food. Read more “Joanne’s Story: Road to Recovery”
David’s story: The emotional impact of post-traumatic smell loss and finding compassion and support
I suffered a head injury in March 2012 after falling from a ladder and hitting my head against a brick wall. After a scan and the wound being stitched, I was quickly sent home. Physically, I appeared to recover well, but after a couple of weeks I realised that I couldn’t smell or taste anything. Read more “David’s story: The emotional impact of post-traumatic smell loss and finding compassion and support”
Adam’s Story: The Physical Challenges That Helped Samters Triad Smell Loss
In January 2017 Adam Hawkins’ life changed dramatically. Having taken nothing more than a normal dose of Ibuprofen he suffered severe respiratory reactions. Then, in the weeks and months that followed, his health unravelled. Eventually, he discovered that he was suffering from Samter’s Triad. Here’s Adam’s story in his own words. Read more “Adam’s Story: The Physical Challenges That Helped Samters Triad Smell Loss”
Joanne’s Story: The Emotional and Mental Effects of Post-Viral Smell Loss
Joanne’s anosmia began in September 2019. The fifty-nine-year-old mother of grown-up twin daughters had just returned to Kent from a holiday in Spain. Rather run-down and very busy in her NHS administrative role, she struggled to sleep and ended up contracting a nasty virus – sore throat, bad cold, wheezy chest and aching, flu-like symptoms.… Read more “Joanne’s Story: The Emotional and Mental Effects of Post-Viral Smell Loss”
Dawn & Malisse’s Story: The Impact of COVID-19 on the Sense of Smell and Taste in Children
Dawn Kafi is a mum whose 11-year-old son Malisse tested positive for Covid-19 on September 20. He began his 10 days isolation and despite initially having no symptoms and feeling quite well, Malisse suddenly lost his taste and smell and everything was making him vomit. He started saying food was off and it continued to… Read more “Dawn & Malisse’s Story: The Impact of COVID-19 on the Sense of Smell and Taste in Children”
Abbie’s Story: Parosmia Following COVID-19 and Tips to Manage It
My name is Abbie, I’m 24 years old and I live in London. My story starts back in August 2021 at a family wedding. During the reception I realised tiramisu no longer tasted like coffee and wine was like water! The next day I tested positive for coronavirus. I had quickly lost my taste and… Read more “Abbie’s Story: Parosmia Following COVID-19 and Tips to Manage It”
Hannah’s Anosmia Story
Have you ever; nearly blown up the house by accident? Eaten something spicy without realising until it’s too late? Been too polite to tell a waiter that you can’t taste the drink he’s asking you to try? I have, my name is Hannah and this is my anosmia story. My diagnosis Picture the scene; it’s… Read more “Hannah’s Anosmia Story”
Let's Talk Smell and Taste
“Smell and taste are the senses that indicate life”
This short film features members of the Fifth Sense community sharing their perspectives on why the senses of smell and taste are so important and the impact that their condition has on their lives. Emotions, memories, day to day experiences, food and drink, connections to people, places and points in time…smell and taste are intrinsically linked to our enjoyment of life and wellbeing.
Let’s Talk Smell and Taste was filmed at our 2015 conference by Fifth Sense member Sarah Page who has congenital anosmia.
Blocked
“What I miss is the sense of relief, release and uplift…I remember as a child going out and that gorgeous, gorgeous smell after the rain…”
Blocked is a documentary made by filmmaker Alice Shaw as part of her BA TV and Radio Production degree at Salford University. It features Fifth Sense member Elizabeth Draper talking candidly about her experience of losing her sense of smell as the result of a head injury and the feelings of grief and loss she experienced.
Alice also lost her sense of smell as the result of a head injury and it was this experience that inspired her to make the film
Just Fly
“Unfortunately for all of us, we don’t live in a world where people can fly. Unfortunately for me, I live in a world where people can smell…”
Dia Kline is a comedian with congenital anosmia. Dia, our first American Public Ambassador, is using comedy to engage people in conversations about anosmia and make the wider world aware of what life without smell is like….and just how much fun flying would be.