Cochrane ENT Covid-19 Anosmia Project
Cochrane ENT are Requesting Patient Involvement:
Fifth Sense are working with Cochrane ENT to seek input in identifying issues and concerns for individuals with loss of their sense of smell for their COVID-19 Anosmia Project.
Cochrane is a global organisation which works to produce evidence about all aspects of healthcare, to help people make decisions about treating or managing their health problem. We do this by summarising all the relevant research that has been produced for a certain condition into a document called a “systematic review”. See https://www.cochrane.org/about-us for more information.
Loss of the sense of smell (anosmia) has been identified as a symptom of the new coronavirus, COVID-19. Some people have persisting problems with their sense of smell after they have recovered. Cochrane ENT are working to summarise the evidence about how to treat loss of sense of smell when it is related to coronavirus. In order to do this, it is important for us to understand the particular issues which are relevant to people who have lost their sense of smell.
Cochrane ENT are producing a list of questions (see the attached link below) that individuals who have lost their sense of smell might want to know about potential treatments. These cover different areas of concern, for example loss of the sense of smell itself, the impact of this on quality of life, loss of the sense of taste. They also cover different questions that people might have – for example, people might want to know if their sense of smell will recover completely, or they might want to know if it will get a bit better (even if it doesn’t completely recover), or they might want to know about risks of taking the treatment.
Cochrane ENT would like to collect the views of individuals with anosmia (related to any underlying cause, not just COVID-19) on whether this list is complete, or if we have missed some important issues. They would really appreciate any contributions to suggest important symptoms associated with anosmia that are not already covered, or to suggest specific questions that you feel it would be useful to be answered as part of the review.
To make your suggestions about the questions compiled – please complete the attached survey by clicking below by 23rd September 2020: